Sultan said: "Being told how long I possibly have to live was very damaging and completely broke me. I had never heard of scleroderma before either and immediately Googled it. "I wish I had wrinkles instead of scleroderma,' she said. "I felt trapped in my body and disconnected with myself. It's like I woke up one day and was a completely different person." The causes of scleroderma still aren't understood, despite the fact that an estimated 6,000 Aussies suffer with the condition, according to Scleroderma Australia.