A young woman diagnosed with a rare disease that's left her with 'claw-like' hands and suffering extreme pain was given just 10 -15 years to live at age 27. Claudia Sultan, an author and project consultant, was sitting at her desk a decade ago and noticed her fingers turning blue and 'icy cold'. Claudia, 37, from Wollongong, New South Wales, assumed she was just feeling the effects of winter - but now knows it was the first sign of a far more sinister diagnosis.